It’s time to take action Before desmoid tumors take over

Tendrils wrap around a woman's leg as she walks her dog.

Desmoid Tumors: The Basics

Desmoid tumors are rare and locally-aggressive growths. They are not commonly known or understood, and being diagnosed with one can leave you with more questions than answers.1-3 Doctors have described desmoid tumors as having “tendril-like” growths because of how they look and how they can invade surrounding parts of your body. These “tendrils” can grow unpredictably.2


You don’t have to feel like your desmoid tumor is taking over your life. Understanding this condition is the best way to have a voice in your care. It’s also important to know what to ask your doctors and care team— so you can have a better understanding of the condition and its impact on your life. Talking to Your Doctors

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Know What Questions To Ask

Ask your doctors and care team questions that can help you get answers about desmoid tumors.

Talk to your desmoid tumor team
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Confirm Your Diagnosis

Learn information that can help you get a timely and accurate diagnosis.

Learning you have a desmoid tumor
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Approaches to Care

Learn about treatment options to discuss with your doctor.

How desmoid tumors are managed

Introducing the Desmoid Tumor Ally Educational Program

Meet the Allies who will share real-world experiences and stories

  • Learn from medical experts with in-depth information about desmoid tumors
  • Join an event live or online—find out how you can advocate for your care

This free program is sponsored by SpringWorks Therapeutics, Inc.

Brad, Desmoid Tumor Ally

  1. Cancer.Net. Desmoid tumor: statistics. Accessed February 12, 2023.
  2. Kasper B, Baumgarten C, Garcia J, et al. Desmoid Working Group. An update on the management of sporadic desmoid-type fibromatosis: a European Consensus Initiative between Sarcoma PAtients EuroNet (SPAEN) and European Organization for Research and Treatment of Cancer (EORTC)/Soft Tissue and Bone Sarcoma Group (STBSG). Ann Oncol. 2017;28(10):2399-2408.
  3. Penel N, Chibon F, Salas S. Adult desmoid tumors: biology, management and ongoing trials. Curr Opin Oncol. 2017;29(4):268-274.