SpringWorks Therapeutics can help you in providing up-to-date desmoid tumor resources and information to help you navigate your condition.
Know what to ask your doctor about desmoid tumors
You may want to bring this Doctor Discussion Guide with you to your next appointment to help get the answers you need about desmoid tumors.
Desmoid tumors may be rare, but you are not alone
Real Stories From Patients With Desmoid Tumors
Advocacy Groups and Additional Resources*
You may find it helpful to reach out to the organizations listed below for information, support, or to connect with others who are living with desmoid tumors.
You can also visit these websites for additional information about desmoid tumors.
Living with a desmoid tumor can impact both your physical and mental health.1,2 It’s important to take care of both…and it’s OK to ask for help. Here are some mental health resources.
SpringWorks Therapeutics is providing these links to help patients find more information about desmoid tumors, but inclusion on this list does not represent an endorsement or a recommendation from SpringWorks for any group or organization. The organizations listed are independent of SpringWorks Therapeutics.
- Gounder MM, Maddux L, Paty J, Atkinson TM. Prospective development of a patient-reported outcomes instrument for desmoid tumors or aggressive fibromatosis. Cancer. 2020;126(3):531-539.
- Timbergen MJM, van de Poll-Franse LV, Grünhagen DJ, et al. Identification and assessment of health-related quality of life issues in patients with sporadic desmoid-type fibromatosis: a literature review and focus group study. Qual Life Res. 2018;27(12):3097-3111.