Desmoid Tumor Ally Educational Program

desmoid tumor tendril

Attend a Desmoid Tumor Ally Educational Program

Join us for a free event

  • Learn about desmoid tumors from a healthcare professional
  • Hear about an Ally’s experiences living with desmoid tumors
  • Have the chance to connect with other members of the desmoid tumor community

These events are open to adult patients 18+ and their care partners in the United States.

Courtney, a real person living with a desmoid tumor

Register to Attend Live & Virtual Events

Attendees are responsible for travel to and from the event.

UPCOMING Live Programs

Desmoid Tumor Ally Educational Program


6:30 PM ET

Coral Gables FL

Desmoid Tumor Ally Educational Program


6:30 PM ET

New York NY

UPCOMING Virtual Programs

Desmoid Tumor Ally Educational Program


7:00 PM ET

Zoom Webinar

Event Registration

Your Information *Required Fields

*Which of the following best describes you?
Name of healthcare professional (e.g., physician, nurse practitioner, etc.) and/or name of institution diagnosing or caring for your desmoid tumor. (This information is optional, and if provided, may help us to engage with you more specifically.)
Event Preferences
*Will you be bringing a care partner and/or significant other?
*How many total guests who are care partners and/or significant others do you plan to bring?
Please list any food allergies or dietary restrictions
What do you hope to gain from this event?
How did you hear about this event?

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If you are interested in learning more about our Desmoid Tumor Ally Educational Programs, please call 1-888-238-0187