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Educational Program
About Desmoid Tumors
Talking to Your Doctors
Diagnosis
Care Options
Resources & Stories
FAQs

Introducing

Desmoid Tumor Ally Educational Program

Attend a Desmoid Tumor Ally Educational Program

Join us for a free event to learn about desmoid tumors from a healthcare professional, hear about patients’ experiences living with desmoid tumors, and have the chance to connect with other members of the desmoid tumor community.

These events are open to adult patients 18+ and their care partners in the United States.

Courtney, a real person living with a desmoid tumor

Register to Attend Live & Virtual Events

Attendees are responsible for travel to and from the event.

Live Program

Desmoid Tumor Ally Educational Program

06/21/2023

6:30 PM PT

Pasadena CA

Desmoid Tumor Ally Educational Program

10/25/2023

6:30 PM ET

Coral Gables FL

Virtual Program

Desmoid Tumor Ally Educational Program

06/08/2023

7:30 PM ET

Zoom Webinar

Event Registration

Your Information *Required Fields

First Name

Last Name

Email Address*

Phone Number

Zip Code

*Which of the following best describes you?

I was diagnosed with a desmoid tumor

I may have a desmoid tumor

I care for someone who has a desmoid tumor

I care for someone who may have a desmoid tumor

I’m interested in learning more about desmoid tumors

I’m involved in an advocacy group

Other

Name of healthcare professional (e.g., physician, nurse practitioner, etc.) and/or name of institution diagnosing or caring for your desmoid tumor (This information is optional, and if provided, may help us to engage with you more specifically)

Event Preferences

*Will you be bringing a care partner and/or significant other?

Yes

*How many total guests who are care partners and/or significant others do you plan to bring?

Please list any food allergies or dietary restrictions

What do you hope to gain from this event?

Education about desmoid tumors

Community of other patients and care partners

Information on talking with a doctor about desmoid tumors

Care options overview, provided by a healthcare professional

Other

How did you hear about this event?

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By checking this box and submitting this form, I certify that I am 18 years or older and living in the United States and I consent to having my personal information collected.*

We will use this information to manage your registration for the program and to contact you if any changes to the program arise. We will not use your information for any other purpose without your consent, and we do not, and will not, sell your personal information. For more information, please review SpringWorks Therapeutics’ privacy policy

If you are interested in opting in to receive information about desmoid tumors, plus site updates, educational information, support resources, and other communication from SpringWorks Therapeutics, its affiliates, and their agents and representatives, please click here to be directed to the sign-up page.

If you are interested in learning more about our Desmoid Tumor Ally Educational Programs, please call 1-888-238-0187

Sign up for information

Educational Program
About Desmoid Tumors
Talking to Your Doctors
Diagnosis
Care Options
Resources & Stories
FAQs

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